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Home Disability Links Resources & Non-Profit Organizations

Resources & Non-Profit Organizations

(The) Arc of The United States
http://www.thearc.org The Arc of the United States- National Office 301-565-3842 The Arc of the United States works to include all children and adults with cognitive, intellectual, and developmental disabilities in every community.
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AAPD American Association of People with Disabilit
http://www.aapd-dc.org American Associatoion of People with Disabilities. 800.840.8844
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Able Project
http://www.ableproject.org Able Project can help! We are creating the largest On-line showcase of mobility and assistive products for People with disabilities. Search, Find and get connected directly to manufacturers, all from comfort of your Home and or office. We also offer a donation program For basic mobility products in Silicon Valley, California. Paiman Komeilizadeh Executive Director Able Project www.ableproject.org Ph 408-263-8000 Fax 408-273-6660 Email info@ableproject.org
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ACA- Amputee Coalition of America
http://www.amputee-coalition.org Amputee Coalition of America- National Office 800.267.5669. The Amputee Coalition of America (ACA) is a national, non-profit amputee consumer educational organization representing people who have experienced amputation or are born with limb differences. The ACA includes individual amputees, amputee education and support groups for amputees, professionals, family members and friends of amputees, amputation or limb loss related agencies, and organizations
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Accessible San Diego
http://accessandiego.org PLAN AHEAD WITH OUR Access in San Diego Guide to find accessible transportation, hotels,restaurants and other services for the disabled traveler. information contact: P.O. Box124526 San Diego, Ca. 92112-4526 858-279-0704 email@accessandiego.org
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Active Amp
http://www.activeamp.org ActiveAmp.org is the on-line connection for Amps (amputees) with an active lifestyle
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ADAPT
http://www.adapt.org American Disabled for Attended Programs Today- 030.733.9324
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ALS Association
http://www.alsa.org ALS Association- National Office 800.782.4747
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ALS Foundation for Life
http://www.alsfoundation.org A non-profit organization dedicated to improving quality of life for ALS patients and increasing public awareness of amyotrophic lateral sclerosis.
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ALS Recovery
www.alsrecovery.org The ALS Recovery Fund is a 501(c)(3) non-profit charitable organization that is built on volunteers. The organization is committed to creating public awareness, promoting research and education, and raising funds for patient care and research in order to find a cure for this life threatening disease.
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ALS Support Group
http://mdausa.org ALS SUPPORT GROUP MEETS 3RD SATURDAY 2 TO 3:30 AT SIERRA VISTA HOSPITAL AUDITORIUM CALL 805-442-5490 (southern Ca.
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Alzheimer's Association
http://www.alz.org Alzheimer's Association National Office 800.272.3900
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American Association of People with Disabilities
http://www.aapd.com AAPD is the largest national nonprofit cross-disability member organization in the United States, dedicated to ensuring economic self-sufficiency and political empowerment for Americans with disabilities. AAPD works in coalition with other disability organizations for the full implementation & enforcement of disability nondiscrimination laws, particularly the Americans with Disabilities Act (ADA) of 1990 and the Rehabilitation Act of 1973.
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American Diabetes Association
http://www.diabetes.org American Diabetes Association National Office 800.342.2383
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American Foundation for the Blind
http://www.afb.org Contact information: 1-800-AFB-LINE (232-5463) afbinfo@afb.net www.afb.org AFB Headquarters 11 Penn Plaza, Suite 300 New York, NY 10001 (212) 502-7600 afbinfo@afb.net
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American Heart Association
http://www.americanheart.org American Heart Association National office 800.242.8721
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American Stroke Association
http://www.strokeassociation.org American Stroke Association- National Office 888.478.7653
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American Syringomyelia Alliance Project
http://www.asap.org American Syringomyelia Alliance Project Inc. National Office 800.ASAP.5669. ASAP's Mission : To improve the lives of persons affected by Syringomyelia, Chiari Malformation and related disorders while we find a cure.
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Amputee Support Group of Delaware
mailto:amputeesgofde@aol.com Amputee Support Group of Delaware, P.O. Box 9029, Wilmington, DE 19809 email: amputeesgofde@aol.com 302-438-8113 Facilitator: Gloria Price, Founder. Purpose: To advocate for and empower people living with limb loss by providing peer support and education
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APDA American Parkinson Disease Assn.
http://www.apdaparkinson.com APDA- American Parkinson Disease Association, Inc- National Office 800.233.2732. Local Information & Referral Center 888.400.2732
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Arthritis Foundation
http://www.arthritis.org The Arthritis Foundation - National Office 800.283.7800 Take Control. We Can Help.
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Autism Society of America
http://www.autism-society.org Autism Society of AMerica- National Office 800.3AUTISM The mission of the Autism Society of America is to promote lifelong access and opportunity for all individuals within the autism spectrum, and their families, to be fully participating, included members of their community. Education, advocacy at state and federal levels, active public awareness and the promotion of research form the cornerstones of ASA's efforts to carry forth its mission.
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Brain Injury Association
http://www.biausa.org The Brain Injury Association, Inc. National Office 800.444.6443- Creating a better future through brain injury prevention, research, education and advocacy. Each year, at least 1.5 million Americans sustain a traumatic brain injury (TBI) resulting in more than 4,000 individuals sustaining a TBI on a daily basis. One million people are treated and released annually from hospital emergency rooms after sustaining a brain injury. Brain injury claims more than 50,000 lives and leaves more than 80,000 individuals with lifelong disabilities each year. The ¡°silent epidemic¡± of brain injury is illustrated best by a 1999 statistic from the Centers for Disease Control and Prevention (CDC)¡ªthere currently are at least 5.3 million Americans living with a disability as a result of brain injury.
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Canine Companions for Independence
http://www.caninecompanions.org Canine Companions for Independence. 800.572.2275 What do we do? Canine Companions for Independence is a national nonprofit that enhances the lives of people with disabilities by providing highly-trained assistance dogs and ongoing support to ensure quality partnerships. How do we do it? Through the generous support of our donors and volunteers. People just like you!
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Cerebral Palsy
http://www.livingwithcerebralpalsy.com/ Living with....... What is Cerebral Palsy? Cerebral Palsy is not an illness and or a disease it is a physical condition that effects people’s movement and it can affect people differently. The CP I have for example effects my mobility and I need to use a walking frame and a manual wheelchair to get around.
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Cerebral Palsy Legal Aid
http://www.unitednationalcerebralpalsylawyer.com/ Cerebral palsy and birth injury information including causes, treatment, resources and legal assistance.
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Challenged Athletes Foundation
http://www.challengedathletes.org/caf/ The Challenged Athletes Foundation (CAF) raises money to provide the means for challenged athletes to realize their accomplishments. A sports chair can cost $2000-$4000, and special artificial limbs allowing people to run can cost up to $15,000. Think of the costs of special training for an athlete with no limbs to be able to swim 1.2 miles of ocean water. CAF is asking for your help. Please visit www.sdtc2002kintera.org, choose the "sponsor participant" option to make an online donation. Or send a check to the Challenged Athletes Foundation to Larry Himmel, 6682 San Hugo Way, Buena Park, CA 90620 or call 858-793-9293
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Challenged Americans
http://www.challengedamerica.org Disabled Sailing with Challenged America Programs & Opportunities "Good small boat sailors make great big boat sailors." Challenged America is a free, San Diego-based, year-round, small and big boat learn-to-sail, advanced sailing and educational program for active individuals with and without disabilities, family members and friends, and professionals in therapeutic-recreational rehabilitation. Your tax deductible Cash Donation is Welcome Please Make Checks out to: Challenged America 2240 Shelter Island Drive Suite 206 San Diego, California 92106
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Christopher Reeve Paralysis Foundation
http://www.crpf.org The Christopher Reeve Paralysis Foundation (CRPF) is committed to funding research that develops treatments and cures for paralysis caused by spinal cord injury and other central nervous system disorders. The Foundation also vigorously works to improve the quality of life for people living with disabilities through its grants program, paralysis resource center and advocacy efforts. 800.225.0292
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Christopher Reeve Paralysis Foundation
http://www.paralysis.org
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Cody Unser First
http://www.codysfirststep.org
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Cody Unser First Step Foundation
http://www.codysfirststep.org Cody Unser First Step Foundation P.O. Box 56696 Albuquerque, NM 87187 Tel: 505-890-0086 Description: Non-profit organization dedicated to raising research funds, public awareness, and quality of life for those afflicated with all forms of spinal cord-related paralysis. Focuses on the cause, rehabilitation, prevention, and cure for transverse myelitis.
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Department of Veterans Affairs
http://www.va.gov Department of Veterans Affairs. 800.827.1000
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Disabled Online
http://www.disabledonline.com Provides a wide variety of topics and resources that benefit the entire disabled community.
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DisabledCommunity.Org
http://disabledcommunity.org Mission: DisabledCommunity.Org: Our hope is that this clearinghouse of information on disabilities will help people with disabilities, their friends, families, caregivers and social service agencies, find the information needed to improve our quality of life. Please send me feedback about DisabledCommunity.Org to Lori Guidos via email at admin@disabledcommunity.org or at 415-665-8641 or on Wednesdays at the San Francisco Mayor's Office on Disabilities between 1:00 - 5:00 at 415-554-6789 or via US Mail at: DisabledCommunity.Org 2018 23rd Avenue San Francisco, CA 94116
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Dystonia Medical Research Foundation
http://www.dystonia-foundation.org Dystonia is a neurological movement disorder characterized by involuntary muscle contractions, which force certain parts of the body into abnormal, sometimes painful, movements or postures. Dystonia can affect any part of the body including the arms and legs, trunk, neck, eyelids, face, or vocal cords.While dystonia is not fatal, it is a chronic disorder and prognosis is difficult to predict. It is the third most common movement disorder after Parkinson's Disease and Tremor, affecting more than 300,000 people in North America. Dystonia does not discriminate - affecting all races and ethnic groups. 312.755.0198
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EnabledOnline.com
http://www.enabledonline.com Connecting People with Disabilities - Our priority is to provide persons with disabilities, their loved ones and caregivers, a place to connect. Featuring our new book Enabled in Words: the Real Lives, Real Victories of People with Disabilities.
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EnabledOnline.com
http://www.EnabledOnline.com EnabledOnline.com's mission, ¡°To connect people with disabilities online¡±, is doing just that with the strong support of an army of volunteer writers who provide fun and informative stories, editorials, forums and other resources each month.
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Family Friendly Fun with Special Needs
http://www.family-friendly-fun.com Family Friendly Fun with Special Needs offers access to mind, body and spirit-enriching information that enhances the quality and enjoyment of family life with special needs.
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Guide Dogs
http:www.guidedogsofamerica.org GUIDE DOGS OF AMERICA 13445 gLENOAKS BLVD. SYLMAR, CALIFORNIA 91342 818-362-5834
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Hope Network Rehabilitation Services
http://www.hopenetworkrehab.org Hope Network Rehabilitation Services is a non-profit organization that provides rehabilitation services to persons recovering from brain and spinal cord injuries as well as other neurological conditions. Because the majority of our consumers have physical limitations, many of the therapies include learning how to use adaptive equipment, services, and programs. Our ultimate goal is for our consumers to reach their highest level of independence possible.
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LILA
http://www.asklila.com LILA (Living Independently in Los Angeles ¨C www.asklila.com) is a free consumer-directed, online project to benefit people living with significant disabilities in Los Angeles County. LILA is an information resource web site, created and mapped online by local LA residents with disabilities, with goal of empowering other disabled residents in their efforts to lead independent, self-directed lives within the social, physical and political fabric of their communities. LILA is also a resource tool to be utilized by families, caregivers, social workers, policy makers and those who provide an array of services to people with disabilities living in or visiting Los Angeles County.John Whitbread at WCIL for a phone contact: (310) 390-3611.
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Muscular Dystrophy Association
http://www.mdausa.org The national website for the Muscular Dystrophy Association
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National Organization on Disability
http://www.nod.org The National Organization on Disability is a cross disability advocacy group based in Washington, DC providing programs including community partnerships, emergency preparedness and Harris Survey research. 202-293-5960
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New Mobility Magazine
http://www.newmobility.com New Mobility is your proactive, controversial, informative monthly resouce magazine for the wheelchair community. Each issue brings you the lastest News and Views on: Disability Rights, Travel, Relationships, Products, Health & Medicine, Sports & Recreation, Access......and much more.
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NIDRR
http://en.wikipedia.org/wiki/NIDRR National Institute on Disability and Rehabilitation Research (NIDRR) is a United States governmental institution that provides leadership and support for a comprehensive program of research related to the rehabilitation of individuals with disabilities. It is subordinate of Office of Special Education and Rehabilitative Services (OSERS)[1], which in turn is a part of United States Department of Education. NIDRR's mission is to improve the lives of individuals with disabilities from birth through adulthood.
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Penna Assistive Technology Foundation
http://www.patf.us PATF is an alternative way for people to obtain the assistive technology devices and services they need through affordale loans. Any Pennsylvania resident with a disability or older Pennsylvanian who needs assistive technology may be eligible for a loan. Call 1-888-744-1938 (Voice), 1-877-693-7271 (TTY)
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Queers On Wheels
HTTP://www.queersonwheels.com Queers On Wheels is an organization that serves the physically disabled GLBTQ (gay, lesbian, bisexual, transgender, or queer) community. We provide literature, teach classes and workshops, and helps people connect and network.Here¡¯s the information you requested. Queers On Wheels: http://www.queersonwheels.com/ Office Phone: 626-578-0140 Fax: 626-578-0140 (call first) Email: queersonwheels@yahoo.com
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Rewarding Work Resources, Inc.
http://www.rewardingwork.org A Web-based service for people with disabilities and their families to find quality personal assistants and home care workers.
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SHANE'S INSPIRATION
http://www.shanesinspiration.org The mission of Shane¡¯s Inspiration is to develop Universally Accessible Playgrounds that allow children with disabilities to play side-by-side with their able-bodied peers, creating a truly integrated environment where compassion and acceptance can flourish. We also provide community outreach, education, and transportation programs with the collective goal of overcoming the barriers of bias by fostering friendships and understanding among children of all abilities.Please feel free to contact us with questions about creating a Universally Accessible Playground in your community, corporate sponsorship opportunities, individual donations, volunteer information, or upcoming events.For general information: info@shanesinspiration.org PHONE (818) 752-5676 FAX (818) 506-1232
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Shared Solutions of America
mailto:lwdbs@aol.com A non-profit organization helping people age 50+ and those with disabilities make modifications to their homes that will help them successfully adapt to their physical challenges or impairments, improve their quality of daily living and comfortably remain in their homes for as long as they like.
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Spina Bifida Association of America
http://www.sbaa.org The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of almost 60 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year.
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Spina Bifida Association of the Tri-State Region
http://www.sbatsr.org The Spina Bifida Association of the Tri-State Region serves New Jersey, Metro New York and Southern Connecticut. We provide information regarding the latest studies and results on folic acid. Go to our website for a complete list of Events, Programs, Resources & Newsletters. Phone: (908) 782-7475
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Spinal Cord Injury Resources
http://www.spinal-injury.net ANDY'S SPINAL CORD INJURY WEBSITE accident in 1994 radically changed my life. Hopefully this website will assist others in understanding the nature of spinal cord injury (SCI). If you, a family member or a friend have recently suffered an injury then although a 'normal' life may seem impossible now, let me assure you with time and knowledge things can and will get better. Please use my 'Interactive Services' Its nice to know who has visited this site.
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SpinalTimes
http://www.spinaltimes.org A hip information source for people with disabilities. Our goal is to Motivate People with disabilities to Move with the Times.
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Strides Therapeutic Riding
http://www.strides.org STRIDES Therapeutic Riding is a community-oriented, non-profit 501(c)3 organization. We are a NARHA (North American Riding for the Handicapped Association) Premier Accredited Center. Premier Accredited Centers have proven their excellence in providing quality, professional therapeutic riding by meeting established industry standards, demonstrated through an on-site accreditation program. All of our instructors are NARHA Certified Instructors. Our goal is to provide physically, mentally and emotionally challenged individuals an opportunity for emotional and physical growth through horsemanship. Volunteers are the mainstay of our program, along with our carefully chosen and highly trained horses and poniesSTRIDES is located at 9001 Wilbur Ave., Northridge, California.STRIDES Therapeutic Riding P.O. Box 572455 Tarzana, CA 91357-2455 (818) 341-4737
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The Boulevard
http://www.blvd.com Resource directory of disability products and services for the disabled, elderly, caregiver and healthcare professional.
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The Dream Society
http://www.thedreamsociety.org A non-profit organization assisting people with moderate to severe physical challenges to become independent, productive citizens. We hope to give people with physical challenges the strength, courage, and financial opportunity to accomplish their dreams of a more fulfilled and independent life.
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The Multiple Sclerosis Association of America
http://www.msaa.com The Multiple Sclerosis Association of America exists to ease the day to day challenges of those with MS, their families and care partners. Our programs included equipment distribution, barrier free housing, and a toll free help line 1-800-532-7667.
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Through the Looking Glass
http://lookingglass.org TLG provides direct services and referral to a diverse group of families of adults with disabilities including those with physical and visual disablilites, deafness and parents with developmental disabilities. 800-644-2666
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Traumatic Brain Injury Help Desk for Caregivers
http://www.tbi-help.org The TBI Help Desk for Caregivers provides a wide range of support resources for families, patients and TBI caregivers at all levels. Live, professionally moderated chat sessions, every Monday evening between 7PM and 8PM, EST. A service of Jamaica Hospital Medical Center.
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United People With Dis "abilities"
http://www.upwd.net United People With Dis"abilities" officially began July 15, 2001. UPWD.net is an organization that is dedicated to serving people with disabilities and their families. UPWD was conceived by, and is managed by people with disabilities. UPWD saw the need for an organization that would unite and be the voice for the 54 plus million American people with disabilities. Membership is free! By joining UPWD, it will allow you not only to be heard, you will also receive benefits and discounts.
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WheelchairNet
http://www.wheelchairnet.org WheelchairNet is a virtual community loaded with information designed to serve the community of people who are interested in selecting, using, testing, researching or living everyday life using a wheelchair. Sponsored by the Rehabilitation Engineering Research Center on Wheeled Mobility at the University of Pittsburg.
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